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Assessment of Dementia Caregiver Burden in Karachi,Pakistan using 10/66 Protocol
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Abstract of the Article
Care arrangements and caregiver burden of people with dementia (PWD) are different in low and middle income countries (LMICs) than in developed countries. This is the first study in Pakistan assessing caregiver burden using the 10/66 protocol. PWD were recruited from outpatient clinics and from the community in Karachi and were diagnosed according to DSM-IV TR. Three scales were used: 1. Zarit Burden Interview (ZBI) to assess caregiver burden. 2. Caregiver Activity Survey (CAS) to assess activities that the caregiver engaged in the last 24 hours to care for PWD and 3. General Health Questionnaire- 12 (GHQ 12) to assess caregiver emotional distress.
The scales were translated, back translated, and tested for conceptual validity in Urdu. The data was entered using EPIDATA and was assessed using SPSS version 22.0. Ethical approval was obtained from institutional review board of Aga Khan University, Karachi.
Mean Zarit Burden Interview score was 11.5 and had significant positive correlation with the caregiver’s level of education (p=0.04) and age (p=0.008) and negative correlation with the mini mental status exam (MMSE) score. An average of 40 minutes per day were spent by the caregivers with PWD in communicating. The mean General Health Questionnaire score was 2.3 with a standard deviation of 3.1. Caregiver training and education methods should be devised especially for older caregivers, those with low level of education, and those taking care of people with moderate stages of dementia. Caregiver support strategies should be devised to manage caregiver distress.
Authors of the Article
- Qurat ul ain Khan ([email protected])
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